Seth Rotberg

Seth Rotberg is a nationally recognized patient advocate, TEDx speaker, and Senior Manager of Patient Advocacy at Solid Biosciences, with over 16 years of experience amplifying patient voices and driving community-centered solutions. Inspired by his mother’s battle with Huntington’s Disease (HD), he has dedicated his career to improving the patient experience through strategic advocacy, cross-sector collaboration, and public speaking. His work spans partnerships with patient organizations, pharma and biotech companies, and healthcare recruitment groups, including leading an FDA Patient Listening Session focused on the pre-symptomatic HD community.

Based in Chicago, Seth enjoys spending time with his dog Winston, exploring new restaurants, traveling, cheering on Boston sports, and playing volleyball.